PWS is a complex genetic disorder that manifests with intellectual 和 development delays, 和 a variety of symptoms including an insatiable appetite, the health implications of which can be serious. Inattention to the unique environments required by those with PWS could be life-threatening 和 special education may also be necessary. Our interdepartmental approach to care helps individuals with PWS thrive because of our educational, 住宅, 职业, clinical 和 wellness programs. 博天堂官方 prides itself in addressing these challenges within a safe 和 healthy environment.
同情 & 理解
This syndrome involving abnormalities of chromosome 15 occurs approximately 1 in 18,000 births 和 is found in all races 和 ethnic groups. In some cases, PWS can also be acquired by head trauma. Among the more serious symptoms are mild to moderate developmental disabilities, emotional 和 behavioral problems, obsessive-compulsive behaviors such as skin picking, 身体新陈代谢缓慢, which can lead to obesity 和 related health problems
“Our daughter has had an incredible opportunity to become part of such an inclusive community where PWS is just a part of life. We learn to celebrate all of the wonderful things she is capable of, while recognizing 和 addressing her needs as well.——博天堂官方入口·帕伦特
Expertise in Treatment 和 Care
博天堂官方, in conjunction with leaders in the field, works collaboratively with families 和 professionals to determine the best approach for PWS care. The team at 博天堂官方 is able to eng年龄 multiple highly trained 和 specialized doctors on all aspects of the syndrome—including program initiatives, 项目评审, 和 clinical 和 medical consultations—for the children 和 adults we serve.
创新 & 卓越
了解PWS护理, read our Tips of the Week posted by Patrice Carroll, 博天堂官方’ PWS Specialist. As part of our innovative 和 comprehensive approach to PWS treatment, 博天堂官方入口也提供驴治疗, 宠物终身护理, 博天堂官方入口工作, 和 other programs that help our residents enjoy life to the fullest 和 grow through experiences 和 interactions. For more information, we recommend these sites:
- National 二氏综合征 Association (USA)
- 二氏综合征 Association of New Engl和
- Foundation for Prader-Willi Research
- International 二氏综合征 Organization
LivingHealthy with PWS Cookbook Series
Written for the community of parents 和 caregivers of those with Prader-Willi syndrome (PWS), this cookbook is a complete resource for planning nutritious, delicious meals for individuals with PWS, 和 it includes tips 和 advice from experts in the field.